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Kidney Recipients

Overview

There are over 150,000 people in the United States living full and active lives with transplanted kidneys. Kidney transplants are truly a miracle of modern medicine. If you are facing kidney failure and are medically qualified for a transplant, we want you to have the miracle of a kidney transplant. We have even written a book for you called Finding a Kidney that will help you navigate this complex process. You can download the book by clicking HERE or you can buy it on Amazon.com. The National Kidney Registry is committed to helping you get a transplant - If you have an incompatible donor or a poorly matched donor - you have come to the right place. We can help you.

The first thing that you need to know is that living donor transplants have vastly superior outcomes. The chart below shows that living donor transplants last nearly twice as long as deceased donor transplants.

Living Donor Kidneys Last Longer

The second thing you need to know is that time matters. The faster you can get a transplant, the better the transplant outcome (see chart below). The best case scenario is to get a transplant before you ever go on dialysis. This is called a pre-emptive transplant and is correlated with significantly higher graft survival rates). If you are not able to get a pre-emptive transplant, time still matters so move fast to get the transplant done as soon as possible.

Ten year overall adjusted graft survival - Pre-emptive Living Donor Transplant vs. Dialysis

 

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Why the National Kidney Registry

If you have an incompatible or poorly matched living donor, the National Kidney Registry will give you the best chance of finding a well matched donor. The National Kidney Registry member centers include the majority of the top transplant hospitals in the United States. Additionally, the National Kidney Registry has facilitated more exchange transplants than any other program in the world. In fact, the National Kidney Registry has facilitated more exchange transplants than all the other U.S. based exchange programs combined. Below is a chart that compares the National Kidney Registry average wait times to those of other exchange systems.

Created a Big Gap in Performance

In addition to reducing the time to get a transplant, the quality of the match may impact your transplant outcome. This is especially important for:

  • unsensitized "A" blood type recipients that have "B" donors,
  • unsensitized "B" blood type recipients that have "A" donors and
  • any recipient that has an "O" donor and a PRA score < 50%

Why is it relevant? Because these types of incompatible pairs can generally be matched in the Registry in a week or two with donors that are highly compatible on dimensions such as age, HLA and size. The Registry allows patients to set preferences that will guide the matching process so that you get the best match possible. Member centers utilize powerful software such as the "Toolbox" and the "Swap Expert".

The Swap Expert Patient Advisory is a customized report provided by our member centers that shows you how many donors in the pool are matching you and all the things you and your transplant team can do to improve you chances of getting a match quickly and/or improving the quality of the match. Once you are enrolled in the Registry, you should ask your transplant center for your customized Swap Expert Patient Advisory to see how many donors are matching you and your expected wait time for a paired exchange transplant.

 

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Why the Match Matters

Registry Member Centers can help you get the best match possible through an Exchange by utilizing the Toolbox and Swap Expert software hosted by the Registry. Below are charts that show the impact of donor age, antigen matching and donor/recipient weight ratio on transplant outcomes.

Donor Age Matters Antigen Matching Matters: Graft Half-Life Donor/Recipient Size Ratio Matters

 

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Compatible Pairs

A compatible pairs is a donor and recipient that are biologically compatible. In many cases they may be poorly compatible and want to find a better match through a paired exchange so that the transplanted kidney lasts longer and functions better. Additionally, many compatible pairs participate in paired exchange to help as many other patients as possible get transplanted. The best compatible pair candidates for inclusion in a paired exchange are unsensitized or lightly sensitized patients with "O" blood type donors. Below is a chart that shows the enormous impact compatible pairs have when they are included in Registry match runs.

Compatible Pairs Facilitate Many Transplants

 

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Patients without Living Donors

The CHIP program helps patients without donors who are either children or are disadvantaged because they are sensitized. Member centers that evaluate Good Samaritan donors and start have the ability to end chains at their centers and get patients transplanted who do not have a living donor. Below is the CHIP program description.

  • NKR member centers that have net chains started > 0 may enroll up to 30 candidates in the CHIP program
  • Net chains started is the total number of chains that a center starts less the total number of chains a center ends
  • CHIP candidates must be children (18 or younger) or sensitized adults
  • The most likely blood types to find a CHIP match are "AB", "A" and "B" blood types
  • The CHIP program is used as a last resort. The probability of a match dramatically improves when a paired donor(s) are available

 

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Next Steps

The next step is to have one of the Registry Member Centers below contact you so that you can enroll in the Registry.

Center Name City Average
Exchange
Wait Time
(months)
Transplants
Facilitated In
Past 12 Months
Unmatched Pairs Total Transplants % Of Pairs
Transplanted
CHIP Patients
Transplanted
Contact
California - US
St. Joseph Hospital CA Orange N/A 0 0 0 - 0 Contact
St. Vincent Medical Center CA Los Angeles N/A 0 0 0 - 0 Contact
Keck Medical Center of USC Los Angeles N/A 0 1 0 0% 0 Contact
Lucile Packard at Stanford Palo Alto N/A 0 0 0 - 0 Contact
Sharp Memorial Hospital San Diego 3 8 2 13 87% 3 Contact
UC Davis Medical Center Sacramento 6 12 6 16 73% 1 Contact
UCSF Medical Center San Francisco 8 16 10 34 77% 5 Contact
Riverside Community Hospital Riverside 12 1 1 1 50% 1 Contact
California Pacific Medical Center San Francisco 12 5 5 18 78% 0 Contact
UCLA Medical Center Los Angeles 14 17 20 59 75% 1 Contact
Loma Linda Medical Center Loma Linda 36 1 3 1 25% 0 Contact
Stanford University Medical Center Palo Alto 84 1 7 9 56% 0 Contact
Delaware - US
Christiana Care Health System Newark N/A 0 1 1 50% 0 Contact
Florida - US
Tampa General Hospital Tampa 5 5 2 5 71% 1 Contact
Illinois - US
University of Illinois MC Chicago N/A 0 1 0 0% 0 Contact
Rush University Medical Center Chicago N/A 0 4 0 0% 0 Contact
University of Chicago Medical Center Chicago 0 3 0 3 100% 1 Contact
Loyola University Medical Center Maywood 2 5 1 17 94% 10 Contact
Indiana - US
Indiana University Health Transplant Indianapolis N/A 0 3 0 0% 0 Contact
Maryland - US
Walter Reed National Military Medical Center Bethesda N/A 0 1 0 0% 0 Contact
University of Maryland Medical Center Baltimore N/A 0 13 2 13% 0 Contact
Massachusetts - US
Brigham and Women's Hospital Boston N/A 0 3 0 0% 0 Contact
Massachusetts General Hospital Boston 12 1 1 1 50% 0 Contact
Missouri - US
Barnes-Jewish Hospital St. Louis 32 3 8 4 33% 0 Contact
New Jersey - US
Newark Beth Israel Medical Center Newark N/A 0 2 5 71% 0 Contact
Our Lady of Lourdes Haddon Heights N/A 0 1 3 75% 0 Contact
Robert Wood Johnson New Brunswick 12 3 3 5 63% 0 Contact
Saint Barnabas Medical Center Livingston 16 10 13 26 67% 1 Contact
Hackensack University Medical Center Hackensack 24 1 2 4 67% 0 Contact
New York - US
St. Luke's Transplant Center New York N/A 0 0 0 - 0 Contact
New-York Presbyterian Columbia New York 0 2 0 5 100% 0 Contact
Mount Sinai Medical Center New York 3 4 1 7 88% 1 Contact
NewYork-Presbyterian/Weill Cornell New York 9 21 16 63 80% 9 Contact
Montefiore Medical Center Bronx 12 2 2 7 78% 0 Contact
Ohio - US
Ohio State University Medical Center Columbus 0 2 0 3 100% 0 Contact
Cleveland Clinic Cleveland 24 1 2 1 33% 0 Contact
Pennsylvania - US
Lankenau Hospital Wynnewood N/A 0 1 0 0% 0 Contact
University of Pennsylvania Hospital Philadelphia 4 3 1 3 75% 2 Contact
Thomas Jefferson University Hospital Philadelphia 8 3 2 3 60% 0 Contact
Pinnacle Health Systems Harrisburg 10 6 5 13 72% 3 Contact
Allegheny General Hospital Pittsburgh 10 6 5 14 74% 0 Contact
Starzl Transplantation Institute/U Pittsburg Pittsburgh 36 4 12 4 25% 0 Contact
South Carolina - US
Medical University of S Carolina Charleston N/A 0 0 0 - 0 Contact
Tennessee - US
Methodist University Hospital Tenn Memphis 24 1 2 1 33% 0 Contact
Texas - US
Methodist Hospital, Houston Houston 0 3 0 7 100% 0 Contact
Utah - US
University of Utah Medical Center Salt Lake City 8 3 2 7 78% 0 Contact
Intermountain Medical Center Murray 12 2 2 2 50% 0 Contact
Vermont - US
Fletcher Allen Health Care Burlington N/A 0 1 1 50% 0 Contact
Victoria - AU
Royal Melbourne Hospital Victoria N/A 0 0 0 - 0 Contact
Virginia - US
Virginia Transplant Center Richmond 6 6 3 8 73% 0 Contact
Sentara Norfolk General Hospital Norfolk 12 1 1 1 50% 0 Contact
Washington - US
Seattle Children's Hospital Seattle N/A 0 1 0 0% 0 Contact
University of Washington Medical Center Seattle 24 1 2 4 67% 0 Contact
Wisconsin - US
University of Wisconsin, Madison Madison 10 16 13 16 55% 6 Contact
Inactive Centers -- 0 1 0 6 0% 0  
TOTALS: 14 180 188 403 0% 45  

 

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National Kidney Registry -- Facilitating Living Donor Exchanges