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About Us

Mission

The mission of the National Kidney Registry is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.

Vision

Every incompatible or poorly compatible living donor in the world will pass through a common registry and find a well matched living donor in under six months.

Organization

The National Kidney Registry is a nonprofit organization based out of Long Island, registered under the laws of the State of New York and supported by counselors, volunteers and partners around the world.

Results

The National Kidney Registry has facilitated more paired exchange transplants than any other organization in the world. Below are the results.

Transplants facilitated Average wait time Percent Pool Transplanted

Our Story

Message from the Founder

When our youngest daughter was 10 years old, her kidneys failed. When we learned that she would never recover her kidney function, I raced home to check my old military records for my blood type to see if I would be able to donate my kidney. I was overcome with relief when I discovered that we were both “A” blood type and I would be able to donate. Both my wife and my oldest daughter were “B” blood type, so they were incompatible and could not donate.

I immediately went to my doctor to see if I was medically qualified to donate. Everything looked good, but my blood pressure was higher than normal so I increased my workout schedule to 2-4 hours a day, 7 days a week. When my doctor measured my blood pressure after a few weeks, it had increased. He sent me home with a 24-hour blood pressure monitor so we could see where my blood pressure was when I was out of his office. That did the trick. I had white coat syndrome. I knew that if my blood pressure was high, it would keep me from donating my kidney and there was nothing more important than being able to donate my kidney to my little girl.

To be safe, I was tested along with three of her uncles. All four of us passed the tests and three of us were three antigen matches. Now I was even more secure. Not only could I donate but I had some very good backups in case something went wrong and I could not donate.

The surgery was scheduled for a Thursday in the middle of May. That Monday, we received a call from the transplant center letting us know there was a problem and we needed to return to the center and do another cross-match test. We took the additional test and waited. Late Tuesday, 36 hours prior to surgery, we received another call. I had failed the cross-match again. Surgery was canceled. I could not donate because my daughter would, most likely, reject my kidney. She had developed a very potent antibody against my B60 antigen.

The following week, an anonymous donor surfaced who was a three antigen match with my daughter. After another trip to the hospital and another cross-match test, we learned that the anonymous donor had failed the cross-match test also. In the weeks that followed, all of the uncles that were initially tested failed subsequent cross-match tests. We had gone from five donors to zero. This was a dark time. In response to this, my wife and I worked around the clock to recruit and test additional donors. We also attempted to enter ourselves in every kidney exchange program in the United States. None of these paired exchange programs were able to find a match for our daughter. Several programs did not even return my many phone calls and some of them wanted to force our daughter to switch to far away hospitals just to enter their exchange program. In the end, after screening 15 potential direct donors, we found one who was compatible and could donate, my daughter’s 23-year-old cousin. He cleared all the hurdles, was an excellent match, and is an incredible person.

My daughter received her new kidney on July 12, 2007. Both my daughter and her cousin are doing well. My primary health focus now is staying in shape so that I can donate my kidney to my daughter in a swap, should my daughter ever need another transplant.

Our transplant-related challenges are behind us, but there are thousands of people who face these same challenges every year. As we struggled through the complex and difficult process of finding a compatible donor, it was clear to me that there was a better way. If all incompatible donors and recipients were simply listed in one common pool and modern computer technology was used to find matches, the problems related to incompatible donors would be a thing of the past. The National Kidney Registry was founded to make this vision a reality.

 

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Management Team

Garet Hil

Garet Hil - Founder and Chief Executive Officer

Founder and President

Garet became involved in kidney-related healthcare when his daughter was diagnosed with kidney failure at age 10. He wanted to donate his kidney and proceeded through the evaluation process only to learn, 36 hours prior to surgery, that he would not be able to donate because his daughter would reject his kidney. Garet’s daughter received a kidney after a difficult and extensive donor search. She and her donor are doing well. It was during this challenging period that he conceived of a better way to organize living donor transplants that could save the lives of thousands of people facing kidney failure. This was the founding idea of the National Kidney Registry.

Garet has 25+ years of business experience, including serving as Chief Executive Officer for both public and private companies. In addition to leading the Registry, Garet owns a consulting & software development company, serves on the boards of Peridrome Corporation and the Dattoli Cancer Center and is a member of the UNOS Paired Exchange Working Group. Prior to starting the Registry, Garet led the $5 million dollar acquisition/turnaround of a digital printing company that was sold after 11 years under his leadership for $1.1 billion dollars. Prior to this, Garet held several management and technology positions at EDS, General Motors, and other leading firms. Garet earned his MBA from the Wharton School, received his undergraduate degree from the University of Montana, and served in the United States Marine Corps. He lives in West Islip, New York with his wife and youngest daughter.

Thomas Mollo

Thomas Mollo - Director of Operations

Director of Operations

Tom’s interest in kidney-related healthcare is one of a very personal nature. Tom’s father, at the age of 48, died as a result of kidney failure. His father left behind a wife and five young children. Not only was his father’s life cut short but his death became a major life-changing experience for the entire family. Tom views kidney exchanges as an opportunity to minimize the chances that other families will have to go through the same devastating experience as he did and to offer a better life to those affected by kidney disease.

Tom has 25+ years of management experience, including senior operating positions at TIAA-CREF and JC Penney. While at TIAA-CREF, Tom was responsible for the communication of sensitive financial information to 3.2 million customers representing over $380 billion in assets under management. Tom has managed large-scale operations and has extensive experience dealing with technology-based mission-critical applications. Tom attended the New York Institute of Technology and served 20 years in the New York Air National Guard.

Rich Marta

Rich Marta - Senior Software Designer

Senior Software Designer

Rich has 30+ years of experience innovating business solutions for leading companies including Prudential, Merrill Lynch, ADP, and DST Systems. Progressing from expanding the applicability of existing equipment, he later developed complete, unique, proprietary systems, bridging inter-industry components using self-conceived hardware. Systems featuring cross-industry component integration generated new capabilities and economies, greatly broadening product salability and realizing millions in savings. While Rich primarily developed manufacturing systems for paper-based products or developed the product itself, he also pioneered many operational and administrative processes, such as the first mixed-weight mail postage payment system recognized nationally by the U.S. Postal Service. In more recent years, Rich extended his ingenuity to software development where his unique client software solutions garnered many loyal customers. Rich received a bachelor’s degree in music composition, performed professionally, and has written much original music.

Joe Sinacore

Joe Sinacore - Director of Research and Education

Director of Research and Education

Joe and his family are personally connected to the issues related to Kidney disease through his cousin who is facing kidney failure and in need of a transplant. Joe is a seasoned executive with 15 years of success in business development, relationship management, team management, and operations leadership positions. Prior to joining the National Kidney Registry, Joe held positions with RR Donnelley and Rapid solutions Group where he managed multi million dollar business relationships with prominent Healthcare and Financial services firms. Well versed in technology, Joe influenced the development of groundbreaking document production and distribution solutions that changed the industry and are still in use today. Joe holds an AAS in Business Administration from SUNY Rockland in Suffern New York. Joe is also active in his church where he served as president of an essential parish organization.

Matthew Ronin

IT Consultant

Matt serves as an Information technology expert for the National Kidney Registry. Matt has over 10 years of leadership experience working as a software architect/designer, an information technology Manager, and a network engineer. Matt has held positions with Telespectrum Worldwide, Intira, DST Systems, Rapid Solutions Group, Global Document Solutions, and St. Francis Hospital. Matt brings with him experience, technical skills, management capabilities to support the National Kidney Registry's ever expanding web presence and telecommunications infrastructure. Matt's work with the National Kidney Registry brings him a special joy in knowing that the work being done gives hope to those facing kidney failure.

 

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National Kidney Registry -- Facilitating Living Donor Exchanges